Here I have inserted some of
the talks that I have done for Afasic. One was at the at their Christmas Carol Service and the other was for a school in London, as well as this one at the House of Lords. I have recently done a talk for Afasic's 40th Anniversary, at Innholders Hall in London on the 26th November 2008.
‘From childhood’s hour I have
not been
As others were; I have not seen
As others see; I could not bring
My passions from a common spring.
From the same source I have not taken
My sorrow; I could not awaken
My heart to joy at the same tone;
And all I loved, I loved alone.
‘Then - in my childhood, in the dawn
Of a most stormy life - was drawn
From every depth of good and ill
The mystery that binds me still...
And the cloud that took the form
(When the rest of Heaven was blue)
Of a demon in my view.’
Edgar Allan Poe
I am dysphasic. This means I have speech and
language impairment.
For some reason I don’t remember being
very aware of it until I was about 15 years old - although my mother
tells me I used to get very frustrated.
I attended Dawn House School for seven years
- until I was 16. Dawn House is a residential speech and language
school in Nottinghamshire. I had a lot of friends there. Of course,
they were all dysphasic as well.
I then went to the FE College in Dunstable
- which is near my home. At first I was in a special needs group
and was top of the class. This made a change and was rather nice!!
But I soon got bored so they gradually moved me into mainstream
classes.
I didn’t find college easy. I had great
difficulty in understanding what was said by my tutors in the classes
- and they were far too busy to help me out very often.
I couldn’t write fast enough to keep
up with the notes, so that meant that if I missed any of the notes
in the class I had to ask my friends. I didn’t like doing
this because they needed their notes themselves. But we plodded
on!!
I am afraid to say that when I finally went
for the BTEC National IT Applications course I failed the first
year. But I did it again. And now - after seven years at college
- I have passed the whole thing. At least I have passed all the
bits I was able to take!
Now I am hoping to go to Portland College -
which is a residential college for the disabled. I will be doing
a “training for work” course. Hopefully that will lead
to an interesting job. I don’t like being bored.
When I left school I had to make new friends
- among non-dysphasic people.
I love meeting people, and being with them,
but I found it hard.
The trouble is that very few people understand
this disorder - so they don’t find it easy to accept us
Some dysphasic's speak slowly - which makes
non-dysphasic's impatient. So they interrupt us. It is very frustrating
not to be able to finish what you are saying.
However, I did have lots of friends at college.
And I still have lots of friends in the clubs I attend; - but they
hardly ever phone up to ask if I want to go out with them. But it’s
coming on.
One thing has been very important to me and
that is the AFASIC Activity Weeks. When I come off one I am already
looking forward to the next one.
I’ve been going on them for eighteen
years and next week I am going to be a Link for the younger ones.
These Weeks have helped my confidence a lot
- and they have helped me to keep up with the friends I made at
school - and to make new ones.
I’ve been very lucky. I managed to get
a place at a school that is specially for this disability.
I was also lucky with Dunstable College. The
Special Needs Coordinator helped me a lot. The staff did too. They
worked it so that I only had to take the bits of the diploma syllabus
that I could manage.
I’ve also been lucky at home, because
I have been able to do lots of things. I water ski. I ride. And
I work with horses. I used to be in a swimming club. I’m still
in a diving club - even though I don’t dive!!!
All this has stopped me being too lonely.
So I am very grateful to everybody who has
helped me.
My mother says AFASIC has been a great help.
She says they have given her a lot of advice and support and she
doesn't know how we would have managed without them.
Certainly from what I have seen they are doing
a lot of good work. I know some of you have helped them to do this
by giving them your support. So I want to thank you as well.
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